Monday, May 13, 2013

"The United States of Autism"

Uniting Autism is hosting, "The United States of Autism at  Dedham Legacy Place #Boston


Autism being on the rise, it is important we and others are informed. Caregivers need to know they are not alone in this journey. We also need to make the community understand and have real families to associate with Autism. Join us for the premiere of “The United States of Autism”, a movie that follows a father's 11,000 mile, 40 day journey across America featuring 21 families and individuals affected by autism.

Support Uniting Autism by reserving a ticket for the movie on 6/13/13 by clicking on the link: http://www.tugg.com/events/3862 . The only way the show happens is if a minimum of 67 people reserve a ticket to join us. You can make this a date night, movie night with the family etc. Please share with your friends and family. I believe we will pack the house.

Uniting Autism Goals
1. Raise Awareness
2. Create Action and change
3. Create Unity within the Autism community.

So reserve your tickets make it a fun movie night!!!!!
 

Tuesday, April 9, 2013

I want you to know

http://www.mytowntutors.com/2013/04/autism-awareness-what-you-should-know/

A blog I shared on mytowntutors.com

What you should know:

I am a mom of a child diagnosed with autism.
I want you to know, no two children are alike. Children with autism see things different from you and me. My child analyzes doors when they shut. We shut a door and think nothing of it. When he shuts a door, he is zoning in on the different parts and trying to understand how it’s able to close. That is just one small example of my child’s uniqueness.
I want you to know that when we hear a car beep it may not be a big deal, but when they hear it beep it can sound extremely loud and feel like its right next to their ears. Sometimes his senses are on overload and something he hears may cause him to have a meltdown.
I want you to know that my child may not want to play with other kids and may be perfectly fine playing in his own world.
I want you to know parents are dealing with a lot. They may not be able to work, which causes financial hardship. There are not a lot of programs that support children diagnosed with autism.
I want you to know it’s not polite to stare at us when our children are in public in the middle of a meltdown.
I want you to know when our children were first diagnosed it was devastating and scary. At the beginning they are fine and hitting all the milestones and then BAM. Overnight they stop speaking. They stop showing eye contact and stop communicating with us. Just stop and imagine how devastating that is for a parent.
I want you to know that it’s okay to include my child to your child events.
I want you to know that my child may not be able to communicate with you but hear you and understand the negative things you are saying about him.
I want you to know it is not okay to talk about my child in front of your child because its rude and because your child will spread the information to the next child which causes people to whisper about me and my child.
I want you to know its okay to teach your child about autism because if you do, it will cut back on the stigma that it’s placed on my child.
Last but not least, I want you to know that even though its Autism Awareness month, in our house autism awareness takes place everyday.

Tuesday, January 29, 2013

Why should I sign up for Uniting Autism?????





I wish there was a way for me to put  my feelings into words.  My site is coming along and I am so excited about what’s happening.  Thinking about how many families, that will benefit from this free site makes me extremely happy.  I have a son with autism.  He is 8 years old.  I have had him for almost 3years……(I know the math does not add upJ.)
Well , his mom died of breast cancer (my aunt)and I took him in.  I cannot begin to explain what I went through when I took him in.  I had no support and felt so alone.  There were support groups but I had no way of getting a baby sitter and it was just time consuming.  One day, I said, “I wish there was a way to have an online support group”….I started making my vision into a reality.
Uniting Autism will have online support.  Not just any support but a support  group that will be moderated and have designated times for us parents to get together to talk, vent, laugh and cry about everything we go through with our kids…..And we go through so many ups and downs that other parents can’t understand.  I   #Get.It
 If this sounds like an exciting adventure, that you would like to be a part of, please email me at CelesteViciere@unitingautism.com so that I can keep you informed about the official launch date.  In the subject line please write, “Support Group”
Thanks,
Celeste Viciere, Founder